Let Hope Grow circle logo with lime green background and dark green border.
a

OUR STORY

Resources

Events

ALS Stories & Memories

Partnerships

Blog & Insights

Contact

!
Let Hope Grow circle logo with lime green background and dark green border.

OUR STORY

Resources

Events

ALS Stories & Memories

Partnerships

Blog & Insights

Contact

Our Resources Library

Because No One Should Go
Through ALS Alone

Support & Resources

We know firsthand how isolating an ALS diagnosis can feel. That’s why we’ve gathered a comprehensive and ever-growing library of resources to support you now and in the future. Select a section below to start connecting with new supports and tools.

Financial Assistance

Overcoming the Financial Barriers Is Possible

I AM ALS

A comprehensive directory of ALS organizations across the United States that provide ALS assistance. They are grouped by the type of services they offer and what areas they serve (i.e., caregivers, legal services, equipment, etc.)

$

ALS partnership
with PAF

(Patient Advocate Foundation)

For complex financial or insurance issues, the ALS Foundation provides support for anyone with ALS anywhere in the country. They also offer a special provision allowing navigators from other ALS organizations to make referrals.

$

Team Gleason

Dedicated to improving the lives of people living with ALS by delivering innovative technology and equipment, and empowering individuals to experience a better quality of life.

$

CCALS

Compassionate
Care ALS

A nonprofit organization supporting people diagnosed with ALS, their families, healthcare providers, and communities as they navigate the complexities of the disease. CCALS provides equipment, educational opportunities, insurance and Medicare assistance, guidance on living with ALS, and caregiving support.

$

Live Like Lou

Their mission is to create and connect communities, stimulate emerging ALS research, and uniquely support families affected by Lou Gehrig’s disease.

$

Wish upon
a Wedding

Wish Upon A Wedding is a national nonprofit that grants weddings and vow renewals to couples facing terminal illness or life altering health circumstances. You can start fundraisers, utilize their service, or donate to their cause.

$

Government Resources

Social
Security Disability Insurance

You should apply once you become disabled. There is no waiting period if your disability results from amyotrophic lateral sclerosis (ALS).

$

I AM ALS

Navigating the VA with ALS

If you are a veteran with ALS, it’s very important that you understand that your condition likely qualifies you for 100% disability and compensation from the VA, regardless of your branch of service or what job you did while in the military, as long as you have 90 continuous days of active duty.

$

Veterans Affairs

How to Apply for
VA Healthcare

Support Groups – Virtual and In-Person

$

I AM ALS

To enroll in their weekly virtual support group, click the link above and register. Once registered, you will receive an email to join the call via Zoom.

$

Everything ALS

You can register and participate in both presentations and “Fireside Chats.” They also have a YouTube channel to watch past presentations.

$

Eye Gaze
Support Group

Meets every Tuesday.

$

Travel Assistance

Yes, You Can Have ALS AND Travel

AccessibleGo

One-stop shop for all your disability travel needs.

$

I AM ALS

Transportation and Travel

Check the Local ALS Association Loaner Closet at your destination for equipment you can borrow rather than bring with you.

$

Wheel the World

Making travel accessible: Explore the world without limits.

$

Lifestyle Modifications

Your Life,
Supported

Adaptive Clothing

Adaptive Feeding/
Eating Utensils

Adaptive Voice &
Communication Devices

Breathing Devices

Exercises / Physical
Activity / Outings

Recommended
Articles & Reading

Always consult your respiratory therapist before ordering any device. Most are covered by insurance, but check with your ALS clinic first.

Before starting any exercise program, please reach out to your neurologist or All Clinic Team member.

Once at the website, click on EXPLORE and then SUITABILITY and select WHEELCHAIR FRIENDLY. It will give you a list of accessible trails in your area.

Looking for an accessible outing – check out your local Botanical Gardens / Zoo / Museums.

Your Life,
Supported

Adaptive Clothing

Adaptive Feeding/
Eating Utensils

Adaptive Voice &
Communication Devices

Breathing Devices

Always consult your respiratory therapist before ordering any device. Most are covered by insurance, but check with your ALS clinic first.

Exercises / Physical
Activity / Outings

Before starting any exercise program, please reach out to your neurologist or All Clinic Team member.

Once at the website, click on EXPLORE and then SUITABILITY and select WHEELCHAIR FRIENDLY. It will give you a list of accessible trails in your area.

Looking for an accessible outing – check out your local Botanical Gardens / Zoo / Museums.

Recommended
Articles & Reading

Newly Diagnosed Resources

Learn About the Diagnosis & Find Resources

Your ALS Guide

An online guide to help you navigate the changes and challenges of everyday life.

$

ROON

This is a trusted guide to basic questions, from what is ALS to medications, trials, etc. Check the site often, as content is constantly being added.

$

I am als

A patient-led organization that promotes advocacy, research, support groups, and resources.

$

Les Turner ALS Foundation

ALS Decision Tools, Guides & Webinars

$

ALS Association

Living with ALS Resources Guide

$

CCALS

(Companionate
Care for ALS)

The organization provides resources, including equipment, educational opportunities, insurance and Medicare assistance, guidance, and awareness with regard to living with ALS and their caregivers.

$

EquipMeOT

Let Hope Grow, Inc. supports individuals with ALS, their families, and caregivers by providing resources or through direct assistance. ALS patients and their loved ones have unique needs and we are a resource to help them navigate this journey by providing them with the tools to navigate challenges that the disease presents themselves with.

$

The storm rages around me
Battering body and pride
It seeps deep into my skin
But I refuse to hide
Challenge is my armor
Against this new found foe
And I’ll gladly stand against the wind
As it tries to strip my soul
The tempest does not let up
It has become a daily fight
But I’ll face the storm head on
until I see the light

Share A New Resource With Us

From Websites To Articles & Everything In Between - If It Supports ALS Patients We Want To Know About It!

Terms

Let Hope Grow Disclaimer

Let Hope Grow, Inc. makes no representations whatsoever about any other website that you may access through this site. When you access a non-Let Hope Grow, Inc. website, please understand that it is independent of Let Hope Grow, Inc. and that Let Hope Grow, Inc. has no control over the content of that website. In addition, a link to a non-Let Hope Grow, Inc. website does not mean that Let Hope Grow, Inc. endorses or accepts any responsibility for the content or the use of the linked website, nor do we receive any compensation or sponsorship. It is up to you to take precautions to ensure that whatever you select for your use or download is free of such items as viruses, worms, Trojan horses, and other items of a destructive nature. If you decide to access any third-party websites linked to this website, you do this entirely at your own risk.