Patients diagnosed with ALS and their loved ones are often devastated by the diagnosis and the disease itself, which ends in paralysis and fatality. The lifespan of a patient with ALS is cut dramatically short, with patients expected to live just 2-4 years. The disease promises to take away the patient's ability to care for oneself, creating an immediate need for accommodations to walk, bathe, and be fed.
Family members, which often include spouses and children, are overwhelmed with responsibilities and the burden that the disease has had on their lives.
In short, it creates a financial and emotional burden on the entire family unit.
Many of the diagnosed patients have served in our Armed Forces, and many are veterans. Those patients (and their caregivers) eligible for VA Benefits receive adequate financial support, and those not eligible for VA Benefits are left with a financial burden. All patients and their loved ones who are impacted by an ALS diagnosis have significant emotional needs that need to be met.
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