Newly Diagnosed

Resources for Patients & Families

Your ALS Guide – An online guide to help you navigate the changes and challenges of everyday life.

ROON – This is a trusted guide to basic questions, from what is ALS to medications, trials, etc. Check the site often, as content is constantly being added.

ANIMALS – A patient-led organization that promotes advocacy, research, support groups, and resources.

ALS Association – Living With ALS Resources Guide (downloadable)

CCALS (Companionate Care for ALS) – The organization provides resources, including equipment, educational opportunities, insurance and Medicare assistance, guidance, and awareness with regard to living with ALS and their caregivers.

Les Turner ALS Foundation – ALS Decision Tools, Guides & Webinars

EquipMeOT – Let Hope Grow, Inc. supports individuals with ALS, their families, and caregivers by providing resources or through direct assistance. ALS patients and their loved ones have unique needs and we are a resource to help them navigate this journey by providing them with the tools to navigate challenges that the disease presents themselves with.

Face The Storm Head On

The storm rages around me
Battering body and pride
It seeps deep into my skin
But I refuse to hide
Challenge is my armor
Against this new found foe
And I’ll gladly stand against the wind
As it tries to strip my soul
The tempest does not let up
It has become a daily fight
But I’ll face the storm head on
until I see the light

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