The Cost of ALS Care – How Families Cope and Where to Find Support
Picture this: You’re sitting at the kitchen table, staring at a pile of medical bills. The wheelchair, the hospital bed, the in-home care—every necessity comes with a staggering price tag. You’ve already drained your savings, cut back on every expense possible, and yet, it’s not enough. Insurance only covers so much, and the reality is […]
Finding Light and Hope During the Holidays: A Caregiver’s Journey
The holidays are a time when the world seems to slow down, and moments of joy and reflection take center stage. But for caregivers supporting loved ones with ALS (Amyotrophic Lateral Sclerosis), this season can bring a mix of emotions. Balancing the heavy responsibilities of caregiving with the expectations of holiday traditions often feels like […]
ALS Caregiving: A Beacon of Compassion
A Daughter’s Gratitude for an ALS Caregiver In early August 2021, my dad received the devastating diagnosis of ALS, just weeks before his 80th birthday. Our family celebrated that milestone, but the joy was tinged with uncertainty—we didn’t know how many more birthdays we’d have together. As the oldest and only daughter, I took on […]